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@cindyweinstein Thanks for the tip. I also much enjoyed Richard Taylor's 2006 book Alzheimer's from the Inside Out as a MCI-level AD-victim and medical-research guinea pig myself, https://www.goodreads.com/book/show/361905.Alzheimer_s_from_the_Inside_Out

@Lupposofi. You are most welcome. I haven't read Richard Taylor's book. Thank you for the recommendation. I recently read Dasha Kiper's #TravelersToUnimaginableLands, which focuses on #caregiving and #dementia. It was excellent. A while back I read #GerdaSaunders, #Memory'sLastBreath, which I liked a great deal. She has #Alzheimers. Sending you all the good vibes.

@cindyweinstein Like Richard Taylor said, the problem is most people with AD have not the time and means to write down how it feels inside. The window between awareness of the disease and succumbing under it is often annoyingly narrow, at least what comes to metacognition. We tend to lose (part of) ourselves and become more or less incoherent. Sometimes we are able to tell, how we wish to be treated, sometimes even that gets lost. Most other people with a disability or handicap are in a better position to speak for themselves, let alone other neuro-atypical ones, and this maybe for a very long time. A dementic would need an interpreter, maybe even a "horse-whisperer", to be heard at all. It is too easy to speak us silent. Even empathic caregivers may do such inadvertently. In a sense this is strange, because most "normal" people are fascinated with fantasy, fiction, and foreign cultures, and many also try very hard to really understand (other) animals and life-forms. Something in this equation doesn't add up.

But I write clumsily, let alone veery slowly, nowadays even in Finnish, my mother's tongue, so I won't try to to express more now. Thanks for lending an ear and for giving some tasty food for thought.

@Lupposofi. Beautifully, powerfully, and the opposite of clumsily stated. Thank you.