Tom Kindlon<p>2/<br>Static and Kinetic Disequilibrium are Central Neural Signs in Patients ME/CFS -Therapeutic Effect of Repetitive Transcranial Magnetic Stimulation</p><p><a href="https://www.imrpress.com/journal/JIN/24/4/10.31083/JIN25488" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">imrpress.com/journal/JIN/24/4/</span><span class="invisible">10.31083/JIN25488</span></a></p><p>Screenshot is from the latest Science for ME weekly update</p><p><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span></p>
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Tom Kindlon<p>"Here are some new analyses from my lab that show elevated lactate in the ME/CFS brain" - Jarred Younger</p><p><a href="https://youtu.be/KDnKD5bpmb0" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">youtu.be/KDnKD5bpmb0</span><span class="invisible"></span></a></p><p>Screenshot is from the latest AMMES May newsletter</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a></p>
Irish ME/CFS Association<p>14/<br>"10-Minute NASA Lean Test (a standardized passive stand test)" <br>(Page 2 of 4)</p><p><a href="https://batemanhornecenter.org/wp-content/uploads/filebase/providers/mecfs/10-Minute-NASA-Lean-Test-Clinician-Instructions-06_12_2022.pdf" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">batemanhornecenter.org/wp-cont</span><span class="invisible">ent/uploads/filebase/providers/mecfs/10-Minute-NASA-Lean-Test-Clinician-Instructions-06_12_2022.pdf</span></a></p><p>One of the fact sheets we sent to 3612 Irish GPs recently</p><p><a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span></p>
Irish ME/CFS Association<p>7/<br>May is Myalgic Encephalomyelitis (M.E.) Awareness Month.</p><p>You can help by sharing and/or liking this image.</p><p>Day #7</p><p><a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicE</span></a> <a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/MyE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyE</span></a> <a href="https://mastodon.ie/tags/CFIDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFIDS</span></a> </p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span></p>
Tom Kindlon<p>2/</p><p>Defining a High-Quality Myalgic Encephalomyelitis/Chronic Fatigue Syndrome cohort in UK Biobank</p><p><a href="https://openresearch.nihr.ac.uk/articles/5-39/v1" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">openresearch.nihr.ac.uk/articl</span><span class="invisible">es/5-39/v1</span></a></p><p>Screenshot is from the latest Science for ME weekly update</p><p><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span></p>
Tom Kindlon<p>(US)<br><a href="https://disabled.social/tags/MillionsMissing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MillionsMissing</span></a> 2025: Sending Out An SOS</p><p><a href="https://www.meaction.net/2025/04/02/millionsmissing-2025-sending-out-an-sos/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">meaction.net/2025/04/02/millio</span><span class="invisible">nsmissing-2025-sending-out-an-sos/</span></a></p><p>Screenshot from the AMMES May email newsletter</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid</span></a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid19</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Covidlonghaulers</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longhaulers</span></a></p>
Deutschland<p><a href="https://www.europesays.com/de/89540/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">europesays.com/de/89540/</span><span class="invisible"></span></a> Rathaus Rheydt wird blau erleuchtet <a href="https://pubeurope.com/tags/aktion" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>aktion</span></a> <a href="https://pubeurope.com/tags/Awareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Awareness</span></a> <a href="https://pubeurope.com/tags/Beleuchtung" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Beleuchtung</span></a> <a href="https://pubeurope.com/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://pubeurope.com/tags/DE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>DE</span></a> <a href="https://pubeurope.com/tags/Deutschland" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Deutschland</span></a> <a href="https://pubeurope.com/tags/Enzephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Enzephalomyelitis</span></a> <a href="https://pubeurope.com/tags/Erkrankung" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Erkrankung</span></a> <a href="https://pubeurope.com/tags/EU" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EU</span></a> <a href="https://pubeurope.com/tags/Europa" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Europa</span></a> <a href="https://pubeurope.com/tags/Europe" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Europe</span></a> <a href="https://pubeurope.com/tags/Fatigue" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Fatigue</span></a> <a href="https://pubeurope.com/tags/Germany" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Germany</span></a> <a href="https://pubeurope.com/tags/Headlines" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Headlines</span></a> <a href="https://pubeurope.com/tags/M%C3%B6nchengladbach" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Mönchengladbach</span></a> <a href="https://pubeurope.com/tags/Nachrichten" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Nachrichten</span></a> <a href="https://pubeurope.com/tags/News" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>News</span></a> <a href="https://pubeurope.com/tags/NordrheinWestfalen" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>NordrheinWestfalen</span></a> <a href="https://pubeurope.com/tags/Rheydt" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Rheydt</span></a> <a href="https://pubeurope.com/tags/Schlagzeilen" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Schlagzeilen</span></a> <a href="https://pubeurope.com/tags/Zeichen" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Zeichen</span></a></p>
Tom Kindlon<p>Important new research from the Netherlands:</p><p>Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest</p><p><a href="https://www.medrxiv.org/content/10.1101/2025.05.02.25326885v1" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">medrxiv.org/content/10.1101/20</span><span class="invisible">25.05.02.25326885v1</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid</span></a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid19</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Covidlonghaulers</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longhaulers</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/covid19" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>covid19</span></a></span> <a href="https://disabled.social/tags/Coronavirus" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Coronavirus</span></a><br><a href="https://disabled.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID19</span></a> <a href="https://disabled.social/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a> <a href="https://disabled.social/tags/COVID_19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID_19</span></a> <a href="https://disabled.social/tags/COVID%E3%83%BC19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVIDー19</span></a> <a href="https://disabled.social/tags/SARSCoV2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SARSCoV2</span></a> <span class="h-card" translate="no"><a href="https://chirp.social/@novid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>novid@chirp.social</span></a></span> <a href="https://disabled.social/tags/novid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>novid</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/novid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>novid@a.gup.pe</span></a></span> <a href="https://disabled.social/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/auscovid19" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>auscovid19</span></a></span> <a href="https://disabled.social/tags/auscovid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>auscovid19</span></a></p>
eladnarra<p>Continuing ME/CFS Awareness Month: </p><p>I had a shower this morning. I use a stool to make things easier, but my heart rate still got up to 122 (due to my POTS + PMS).</p><p>That tachycardia is tiring! And afterwards I struggled to pull on my tightest compression tights, which tired me out further.</p><p>I'd like to refill my water bottle and reheat some leftovers in the microwave for lunch, but I need to rest with my feet up first (or wait for my spouse to do it for me).</p><p><a href="https://disabled.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a></p>
Tom Kindlon<p>From meresearchuk </p><p>The Spring 2025 issue of Breakthrough is now available online, including a look at new research using MRI to track changes in the brain, an article on finding a biomarker for ME/CFS, an interview with Jente Van Campenhout, and much more <a href="https://meres.uk/breakthrough" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">meres.uk/breakthrough</span><span class="invisible"></span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a></p>
Tom Kindlon<p>ME Research UK's April 2025 e-newsletter was sent out today. Want to join the mailing list? It is easy to do - <a href="https://shorturl.at/Bvqeu" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">shorturl.at/Bvqeu</span><span class="invisible"></span></a></p><p>Alternatively, read the e-newsletter on our website -<br><a href="https://bit.ly/4lNP07b" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">bit.ly/4lNP07b</span><span class="invisible"></span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a></p>
Tom Kindlon<p>From ME Research UK:</p><p>Having “CFS/ME” deeply impacts “experience of adulthood & relationships, and the consolidation and formation of identity” finds a small Australian study. “People not understanding” was identified as "the biggest struggle" with having the disease</p><p>More: <a href="http://tinyurl.com/mr3rr8nx" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">http://</span><span class="">tinyurl.com/mr3rr8nx</span><span class="invisible"></span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a></p>
Tom Kindlon<p>From meresearchuk </p><p>Joanne Hunt – a researcher at Uppsala Universitet in Sweden and “person with severe ME/CFS”, has written an article which highlights the lack of attention given to inequalities between different groups of people with ME/CFS. </p><p>Read more: <a href="https://bit.ly/3EPc6JM" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">bit.ly/3EPc6JM</span><span class="invisible"></span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a></p>
Irish ME/CFS Association<p>2/<br>Details for the next meeting of the Bray ME/CFS adult support group</p><p><a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicE</span></a> <a href="https://mastodon.ie/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <a href="https://mastodon.ie/tags/Bray" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Bray</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span></p>
Irish ME/CFS Association<p>The next meeting of the Bray ME/CFS adult support group is on Friday, May 16.</p><p>See next post for more details</p><p><a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://mastodon.ie/tags/Bray" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Bray</span></a> <a href="https://mastodon.ie/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span></p>
Irish ME/CFS Association<p>6/</p><p>May is Myalgic Encephalomyelitis (M.E.) Awareness Month.</p><p>You can help by reposting and/or liking</p><p>Day #6</p><p><a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicE</span></a> <a href="https://mastodon.ie/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a> <a href="https://mastodon.ie/tags/CFSME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFSME</span></a> <a href="https://mastodon.ie/tags/meeps" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>meeps</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span></p>
Irish ME/CFS Association<p>6/<br>May is <a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> (ME) Awareness Month.</p><p>You can help by reposting +/or liking this video. It's a preview of a documentary, formerly called "Blue Ribbon" (now called The Forgotten Plague) (3 mins 5 secs)</p><p><a href="https://youtu.be/y69PqwZoUws" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">youtu.be/y69PqwZoUws</span><span class="invisible"></span></a></p><p>Day 6 <a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span></p>
Nina Pescatore<p>Oh wow. <a href="https://todon.nl/tags/MustSee" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MustSee</span></a> </p><p><a href="https://todon.nl/tags/PAIS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PAIS</span></a> <a href="https://todon.nl/tags/PAIZ" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PAIZ</span></a> <a href="https://todon.nl/tags/ME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ME</span></a> <a href="https://todon.nl/tags/CVS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CVS</span></a> <a href="https://todon.nl/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://todon.nl/tags/Lyme" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Lyme</span></a> <a href="https://todon.nl/tags/EBV" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>EBV</span></a> <a href="https://todon.nl/tags/Gyardia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Gyardia</span></a> <a href="https://todon.nl/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://todon.nl/tags/Fybromyalgie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Fybromyalgie</span></a> <a href="https://todon.nl/tags/Fybromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Fybromyalgia</span></a> <a href="https://todon.nl/tags/CGT" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CGT</span></a> <a href="https://todon.nl/tags/CBT" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CBT</span></a> <a href="https://todon.nl/tags/GET" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>GET</span></a> <a href="https://todon.nl/tags/PEM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PEM</span></a> <a href="https://todon.nl/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a> <a href="https://todon.nl/tags/MillionsMissing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MillionsMissing</span></a> </p><p><a href="https://www.youtube.com/watch?v=J0ywwLIfH_w" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">youtube.com/watch?v=J0ywwLIfH_</span><span class="invisible">w</span></a></p>
Tom Kindlon<p>3/<br>"Participants shared several aspects of their experience which provided comfort or determination"</p><p>Screenshot from<br><a href="https://chroniclivingtherapy.com/1-elsewhere-web/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">chroniclivingtherapy.com/1-els</span><span class="invisible">ewhere-web/</span></a></p><p>From:<br>“I would love to say it’s the fatigue but honestly it’s not”: Into Adulthood with CFS/ME</p><p><a href="https://www.tandfonline.com/doi/full/10.1080/13548506.2025.2495891" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">tandfonline.com/doi/full/10.10</span><span class="invisible">80/13548506.2025.2495891</span></a></p><p><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicillness</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>spoonies</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/pots" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>pots</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>fibromyalgia</span></a></span></p>
Tom Kindlon<p>Provocation of brachial plexus and systemic symptoms during the elevated arm stress test in individuals with myalgic encephalomyelitis/chronic fatigue syndrome or idiopathic chronic fatigue</p><p><a href="https://pmc.ncbi.nlm.nih.gov/articles/PMC11752803/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">pmc.ncbi.nlm.nih.gov/articles/</span><span class="invisible">PMC11752803/</span></a></p><p>Screenshot from the AMMES May email newsletter</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PwME</span></a></p>
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