Conducting the ‘broken orchestra’ of my life means surviving chronic pain, systemic neglect, and endless paperwork, while being told I’m ‘too complex’ for help.

My new piece on Medium is a call for true inclusion and understanding.

#DisabilityJustice #Spoonie #Poverty #ActuallyAutistic #NDIS #LivedExperience #NothingAboutUsWithoutUs #auspol #DisabledBySociety

https://medium.com/@dwtutoringeducation/trying-to-survive-the-system-my-lived-experience-of-multiple-disabilities-4a9959a3c43f

Gutting OCR is what ultimately led me to cutting my father off, after he celebrated it online. I wrote him a scathing message and blocked him from all platforms. He has three grandchildren, including one grandson with autism, and witnessing him take joy in the dismantling of the entity responsible for protecting his son’s federal rights in school was the end of the line for me.

https://www.reddit.com/r/LeopardsAteMyFace/comments/1k0ldht/comment/mng31rb/

We’re excited to announce our upcoming #Opioid #Archive National Symposium, Tues, May 6 – Thurs, May 8. Check out the lineup of speakers on topics including #HealthJournalism #HealthPolicy #HealthLaw #InformationScience #Archives #HistMed #ScienceHistory #VisualArt #LivedExperience https://oida-resources.jhu.edu/oida-national-symposium-2025/

Please share - call for papers

Benefits and challenges of integrating lived experience in higher education

Special Issue Editors: Snita Ahir-Knight & Hazel Godfrey

Manuscript deadline: 25 April 2025

More information: https://think.taylorandfrancis.com/special_issues/benefits-and-challenges-of-integrating-lived-experience-in-higher-education/

My latest research study focuses on the lived experiences of autistic academics working in autism friendly universities in Ireland. If you are an autistic lecturer or professor please consider participating in the research https://forms.office.com/e/tgv33aYjsq #autism #autistic #research #academic #livedexperience #university

Food for thought on the #livedexperience and #peerwork movement in #mentalhealth in the inaugural Stratford Lecture by Mind Australia, particularly in the keynote by Ellie Hodges & Q&A after - I'm definitely going to do some more reading on the Waters of Systems Change research. #australia #psychiatry #mad #eatingdisorders
https://mindaustralia.org.au/news/stratford-lecture-driving-system-change?_gl=1%2A1xesxqy%2A_gcl_au%2AMTExNTEzMjExMi4xNzM3OTUzMTk2%2A_ga%2AODgwNzYxODU0LjE3Mzc5NTMxOTY.%2A_ga_2H9ZM2Q4F9%2AMTczNzk1MzE5Ni4xLjEuMTczNzk1MzM4Ny42MC4wLjA.

Navigating the Ocean of Human Experience: A Journey into Phenomenological Psychotherapy

#PhenomenologicalPsychotherapy #HumanExperience #Empathy #ExistentialInjustice #MentalHealthJourney #HeartfeltConversations #Psychotherapy #Understanding #HumanConnection #IntellectualCuriosity #MindAndHeart #LivedExperience #HealingJourney

https://youtube.com/shorts/0Mjdtdfwio0?feature=share

I am conducting a study on the lived experiences of autistic academics working in Autism Friendly Universities in Ireland. If you would like to be involved please contact me at the details provided below. Thank you! #autism #autistic #research #autismfriendly #livedexperience

Locked Up Living Malinder Bhullar (video) Hidden in Plain Sight: Discovering Autism in Adulthood: Malinder is a forensic psychologist from Australia who moved to the UK in 2003. She enjoyed a diverse and exciting career in a number of NHS forensic mental health services around the UK, before moving into private practice in 2020 after some very difficult workplace… https://lockedupliving.podbean.com/e/malinder-bhullar-video-hidden-in-plain-sight-discovering-autism-in-adulthood/?utm_source=dlvr.it&utm_medium=mastodon @lockedupliving #AutismAwareness #MentalHealth #ForensicPsychology #TraumaInformed #LivedExperience

Are policymakers more likely to reply to #email messages that narrate #livedExperience?

A high-powered series of rapid-cycle randomized control trials (Ns ≅ 6000-11000) found mixed results (positive, negative, and null).

https://doi.org/10.1016/j.dadr.2024.100299

Follow RECLAIM Collective and sign up for their emails! #harmreduction #livedExperience https://reclaimcollective.ca/

Whoopi Goldberg Steps in During Tense Moment Between Co-Hosts on ‘The View’ https://www.inbella.com/772937/whoopi-goldberg-steps-in-during-tense-moment-between-co-hosts-on-the-view/ #2024PresidentialElection #AlyssaFarahGriffin #BillMaher #CelebritiesNews #DonaldTrump #LivedExperience #SunnyHostin #WhoopiGoldberg

#MadLiterature
Available for pre order:

A Mad Turn
Edited by Phil Smith

Written by Mad scholars, A Mad Turn explores the field of Mad Studies in theory and practice, and what Mad Studies can bring to academia and to other social institutions. What does it mean to “do” Mad Studies? What are the field’s intersections with disability justice, Mad justice, and gender and queer studies? This book is a bold step toward the Mad Studies yet-to-come—a Mad Studies that Mad people will build, twisting and turning and singing and dancing, a new realm of thinking-being-doing-knowing. Step into it with us.

https://autonomous-press.myshopify.com/products/a-mad-turn

Hashtags & Group mentions below
#LivingMad
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation #SystemicInjustice #AltMentalHealth #instutionalization #PeerSupport #asylum

——

@MadMovementMastodon @disabilityjustice@a.gup.pe @disability @DisabilityJustice@chirp.social
@disabilityhistory @neurodivergence

Empowering Patient Research.

An interesting look at the benefits of #LivedExperience in improving #Medical #Research.

https://aeon.co/essays/we-need-the-first-hand-experience-of-disabled-researchers

In this episode with David, we wanted to talk with him about the work he has been doing since leaving the prison system. We cover his work at the Freedom Project and the Black Rose Collective.

David knows first-hand the impacts of mass incarceration, after receiving a life sentence at the age 16. In his words, “being thrown away at 16 years old wasn’t the event. It was an exclamation point” on the consistent messaging he’s been receiving his whole life from systems that failed to see his humanity. He was released after serving 24 years, following legislative reform of juvenile sentencing standards due to a new understanding of youth brain science.

https://podcasts.apple.com/us/podcast/you-know-me-now/id1606562361

Tell us your #LivedExperience as an Autistic/ ADHDer

Join the conversation @muchmuchspectrum
Credit: Aditi Gangrade

For personal stories, community wisdom visit www.muchmuchspectrum.com