Another day - another brainfog - another comic you can support by subscribing for FREE in Tapas (or read for free in Ko-fi) to spread disability awareness with me and help me survive March by maybe dropping me a braincell in ko-fi too? (:
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(Please share!)
Had to take an early nap today since yesterday and last night were at the "goddamn this is hard"-bracket.
Now I just sit and wonder if I can get anything done today, or will I rest today so maybe tomorrow would be better...
I call it "disability math". (Not coined by me)
I lost my ability to string sentences earlier today from being so sleepy. My partner could see I was getting VERY frustrated of it, were kind to me, and understood my gibberish anyway. That stopped me from crying and collapsing.
It is painful to stay awake, and even harder if you are surrounded by people who don't get it and who womt let you nap.
I'm so glad I don't live like that anymore and can rest instead.
You can also read my comic for FREE in my Ko-fi, download high-res images of it for personal use, and support my disabled butt to survive life as an artist in one KOFI!
Please share, so those who love supporting disabled artists can see this and get their money's worth sneak peeks, art downloads, and good karma. <3
New comic for my disabled folks to experience Brain Fog! I no longer promote my comic in FB so please share, visit, and subscribe to my little Idiopathic Hypersomnia awareness comic for FREE!
A lot of the comic strips are relatable for those who don't have this disabling sleep disorder. <3
You can also read the comic for free in my Ko-fi, leave me a little donation so I can keep going (art is the only job I can do), download the comic in high-res for personal use (like to rub it into ableist family members' faces!), and see my other art. (:
I could not have had a worse night even if I tried...after so perfectly good day it feels so infuriating to have a awful night topped with painful morning. Yesterday I managed Not to nap and it wasn't the worst, but today? Today might just be one of those days when I need several naps and still feel like I died six months ago, while attenpting to necromance myself back to life.
If you want to know what it is like to live a day in my shoes - down some sleeping pills and try not to fall asleep. (: Literally.
Please share, do the stuff, so my comic about Idiopathic Hypersomnia gets to see a light of day:
Hey sleep disorder friends, I need advice and I’m looking for other folks’ experience. Pls boost? #SpoonieChat #SleepDisorder
I have a REM movement disorder and wake up a lot in the middle of the night. Gabapentin helped a lot, but also made me dumber so I had to discontinue.
Doctor recommended looking into Requip (ropinirole). Looks like it’s a dopamine agonist and often works for a short while and then makes the problem worse?
I think I have reached an important milestone in my life - I no longer want to sleep over 9am, even if my sleep disoder demands I sleep forever and makes me fall back asleep over and over and over and over.
This includes the days when I am "allowed to" sleep more: Weekends, free days. Etc.
Maybe it is the desire to some resemblance of control with IH, being sick of sleeping my life away, or just...deep feeling of missing out on too damn many hours.
Would you like to be merry and gain some good Karma this Holiday season? Drop by to read and Subscribe to my FREE disability advocate comic about #IdiopathicHYpersomnia - last comic of the year just dropped. <3
You can also visit my ko-fi to follow, and donate some holiday cheer - supporters get access to comic sketches and more!
Please share! (:
Tapastic: https://tapas.io/episode/3388619
Would you like to know what IH is really like?
Here is a mini-movie about it by #HypersomniaFoundation
Please share to spread #IdiopathicHypersomnia awareness! <3
Mu dreams are deceiving - I dreamt that I looked at my watch and it was 7am. It was not really 7am...
This is one of the reasons why getting up in the morning with IH is a nightmare. Reality is malliable and full of dreams that lie.
I rather see nightmares than the dreams where I can barely stay awake and keep falling asleep and "waking up". It is like torture to be sleepy during the day all the time, just to then dream I am passing out from it in my dreams.
It squeezes my head like hot cling film burning my brain when I finally wake up to reality. This shit isn't rest, not even remotely.
Think I'm going to have to quit working on this #ArchLinux issue for today. I've been up almost 2 days straight, #arthritis in my right hand is flaring, and my neck hurts. I generally feel like total crap lol.
I got as far as installing systemd-boot and rebooting. Now I'm stuck in the boot manager. Would someone more experienced with #Linux be willing to connect with me remotely in the next few days and help? I'm in Central Time, but due to sleep issues, I can't specify an exact time. We can coordinate once I'm feeling better. No offense, #blind friends, but I probably need someone with working eyes since the boot menu doesn't talk.
Just so everyone gets on the same page:
Idiopathic Hypersomnia is a rare neurological sleep disorder without known cause or cure. There is only one FDA approved medication (Xyvaw), and other medications that are given to manage the sleep disorder are off label. Most medications are stimulants and try to keep us awake during the day.
Anyone who claims to cure IH is a scammer since the root cause is currently unknown.
Do. Not. Give. Money. To. Scammers.
I am having a better day (who knew magnesium would be so helpful??) so I managed to get my comic out!
Please share to help me spread awareness of #IdiopathicHypersomnia and #Disability with my #comic - it is FREE.99 in Tapastic, and every sub helps me get closer to my goals with this awareness work!
I am only 45 subs shy from my Tapastic INK goal of 250 subs that will allow my webcomic subscribers give me Tapas INK to support the comic!
You can get the INK for free and gift it to your favorites, which is cool since my comic is also entirely, 100% FREE to subscribe to.
Please share, go subscribe, and help me reach that goal this year?
