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Johannes W. DietrichComplex regional pain syndrome (CRPS) goes along with secondary <a href="https://qoto.org/tags/hyperparathyroidism" class="mention hashtag" rel="nofollow noopener" target="_blank">#hyperparathyroidism</a>. Our group was the first to describe this. The mechanism leading to <a href="https://qoto.org/tags/sHPT" class="mention hashtag" rel="nofollow noopener" target="_blank">#sHPT</a> is unclear, but it may contribute to the loss of bone substance in <a href="https://qoto.org/tags/CRPS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CRPS</a>.<a href="https://pubmed.ncbi.nlm.nih.gov/30747906/" rel="nofollow noopener" target="_blank">https://pubmed.ncbi.nlm.nih.gov/30747906/</a><a href="https://doi.org/10.1097/j.pain.0000000000001520" rel="nofollow noopener" target="_blank">https://doi.org/10.1097/j.pain.0000000000001520</a>

@FourQ ♿On the hunt for a front wheel with suspension to add to the knock-off Frogs Legs forks on my wheelchair. If anyone knows of any ~7" castor wheels with shock absorption / suspension on the wheel itself could you get in touch please? <a href="https://mastodon.online/tags/Disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#Disability</a> <a href="https://mastodon.online/tags/Wheelchair" class="mention hashtag" rel="nofollow noopener" target="_blank">#Wheelchair</a> <a href="https://mastodon.online/tags/Pain" class="mention hashtag" rel="nofollow noopener" target="_blank">#Pain</a> <a href="https://mastodon.online/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicIllness</a> <a href="https://mastodon.online/tags/CRPS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CRPS</a>

Scottrossiomfg i met another <a href="https://mastodon.social/tags/stroke" class="mention hashtag" rel="nofollow noopener" target="_blank">#stroke</a> victim who has this horrid disorder called <a href="https://mastodon.social/tags/crps" class="mention hashtag" rel="nofollow noopener" target="_blank">#crps</a> !!!! once again counting my blessings that "all"i got was a paralyzed arm and somebrain damage

Otto<a href="https://social.linux.pizza/@coeusprime" class="u-url mention" rel="nofollow noopener" target="_blank">@coeusprime</a> i broke my 5th meta so many times i cant count now. then i had surgery on it because the pain was more than i could live with, then i woke up with <a href="https://mstdn.social/tags/crps" class="mention hashtag" rel="nofollow noopener" target="_blank">#crps</a>.crps is a special hell. the nerve is just turned on. all the time. comes off as burning. all consuming everything is lava burning. i cant think about almost anything else anytime, anyday. my foot is on fire.every setback has been accompanied by doctors saying trust me.

Ottosince i read the newest review for <a href="https://mstdn.social/tags/crps" class="mention hashtag" rel="nofollow noopener" target="_blank">#crps</a>, i have also been microdosing tadalafil, with my doctors approval.i need it to be microer. it works.

thomaswedelFrage als Nicht-Mediziner an die MedBubble: Gibt es zur Behandlung von <a href="https://sueden.social/tags/CRPS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CRPS</a> eine Einheits-Vorgehensweise oder eigenständige europäische/deutsche „Schulen“? An meinem besten, extrem leidenden US-Freund wird seit Jahren von US-Ärzten herumgedoktert. „Zweite Meinung“ wäre hilfreich. Bin dankbar für alle Links zu europäischen Communities/Einrichtungen, sofern es solche gibt.

Eugenia LI'm at my mom's, and it saddens me to see her in much pain from <a href="https://mastodon.social/tags/CIRVA" class="mention hashtag" rel="nofollow noopener" target="_blank">#CIRVA</a> / <a href="https://mastodon.social/tags/CRPS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CRPS</a>, a chronic condition where the whole arm is getting extremely painful, for years after vaccination. For her it started immediately after getting the flu vaccine and later the covid one on the same arm (her other arm had no problem). I feel guilty that I was pushing her to get the covid vaccine back then. Her condition is very rare, but it does happen occasionally.<a href="https://mastodon.social/tags/health" class="mention hashtag" rel="nofollow noopener" target="_blank">#health</a> <a href="https://mastodon.social/tags/greece" class="mention hashtag" rel="nofollow noopener" target="_blank">#greece</a> <a href="https://mastodon.social/tags/vaccine" class="mention hashtag" rel="nofollow noopener" target="_blank">#vaccine</a> <a href="https://mastodon.social/tags/vaccines" class="mention hashtag" rel="nofollow noopener" target="_blank">#vaccines</a> <a href="https://mastodon.social/tags/covid" class="mention hashtag" rel="nofollow noopener" target="_blank">#covid</a> <a href="https://mastodon.social/tags/flu" class="mention hashtag" rel="nofollow noopener" target="_blank">#flu</a>

Maggie MaybeI watched that Netflix program about that little girl Maya with <a href="https://zeroes.ca/tags/CRPS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CRPS</a> this morning. She got it from a random respiratory infection.Did you guys know that the child protection services department in Florida is privatized??And that wasn’t the only problem, this family had to sue Johns Hopkins for accusing the mother of Munchhausen by proxy.But you guys, Florida took this girl from her family because she had chronic pain and the doctors accused the child of lying. Even Johns Hopkins was claiming that she wouldn’t be having problems after a respiratory infection.If you live in Florida and your child has long Covid BE CAREFUL.Bless this family for putting themselves through even more trauma and suing the people who did this. Hopefully Johns Hopkins and Florida has learned its lesson and they don’t do this to anyone else.<a href="https://zeroes.ca/tags/FL" class="mention hashtag" rel="nofollow noopener" target="_blank">#FL</a> <a href="https://zeroes.ca/tags/CPS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CPS</a> <a href="https://zeroes.ca/tags/DCYF" class="mention hashtag" rel="nofollow noopener" target="_blank">#DCYF</a> <a href="https://zeroes.ca/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://zeroes.ca/tags/TakeCareOfMaya" class="mention hashtag" rel="nofollow noopener" target="_blank">#TakeCareOfMaya</a>

happygeek :unverified: + :verified: = $0Ever feel like the world is conspiring against you? Phone call from the (very good) NHS pain clinic secretary to let me know that I can't have any more ketamine infusions until the issue with my heart is sorted out as it's a contraindication. I was due the next in three weeks as I have them every month.OK. But.The echocardiogram I was meant to have privately was cancelled by the referring anaesthetist because my arm surgery is in the process of being transferred to the NHS - under the same surgical team. If the pre-surgery assessment ECG shows up anything amiss they will do the echo then.I have no date for the surgery, hence no date for a pore-surgical assessment, hence no Ketamine infusions for, quite possibly, many months.Oh well, it's only excruciating chronic pain - nothing to see here. When it's decided if/if not my heart really is an issue and my pain consultant (if not) can do the infusions again, it will take at least 4-6 weeks to arrange, pushing it even further into the foggy future.Is it too early to start drinking?<a href="https://infosec.exchange/tags/CRPS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CRPS</a> <a href="https://infosec.exchange/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://infosec.exchange/tags/pain" class="mention hashtag" rel="nofollow noopener" target="_blank">#pain</a>

SteinchenMorgen ist der Fuß 12 Jahre lang kaputt.Und ich wunder mich, dass wir so durch den Wind sind. <a href="https://lustigetiernamenbubble.de/tags/crps" class="mention hashtag" rel="nofollow noopener" target="_blank">#crps</a>

Transl. Soc. Neuroscience LabOur smartphone-based 📱 <a href="https://neuromatch.social/tags/research" class="mention hashtag" rel="nofollow noopener" target="_blank">#research</a> with <a href="https://neuromatch.social/tags/CRPS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CRPS</a> patients, in collaboration with Heike Rittner and Claudia Sommer, uncovers gender differences in social <a href="https://neuromatch.social/tags/support" class="mention hashtag" rel="nofollow noopener" target="_blank">#support</a> on pain intensity: while men benefit more from solicitous support, women benefit from emotional support.<a href="https://doi.org/10.1186/s12883-024-03792-z" rel="nofollow noopener" translate="no" target="_blank">https://doi.org/10.1186/s12883-024-03792-z</a>

@FourQ ♿<a href="https://mastodon.social/@licked" class="u-url mention" rel="nofollow noopener" target="_blank">@licked</a> Sorry to hear that. Mine's my left knee. Searing pain, like being set alight or catching a soldering iron, stabbed and electrocuted. Nobody believes you're in *that* much pain, especially because "you look fine to me". RTC was 2007 but the pain built up and up in the few years afterwards. It continues to get worse each year. Diagnosed with <a href="https://mastodon.online/tags/CRPS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CRPS</a> in 2018 In flares, just swinging your legs out of bed causes yelling and screaming. But nobody can believe it because it's so ridiculously bad!

dodothedev🦤💻Wow, this is seriously good news for people with Chronic Pain like CRPS (which I had and am in "remission" from) and other autoimmune diseases. I hope it allows people to finally find peace. <a href="https://www.nature.com/articles/d41586-024-01259-2" rel="nofollow noopener" translate="no" target="_blank">https://www.nature.com/articles/d41586-024-01259-2</a><a href="https://front-end.social/tags/CRPS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CRPS</a> <a href="https://front-end.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicPain</a> <a href="https://front-end.social/tags/autoimmunedisease" class="mention hashtag" rel="nofollow noopener" target="_blank">#autoimmunedisease</a>

OsteoarthriticAutisticThe 20 ‘most painful' health conditions, according to the NHS <a href="https://www.msn.com/en-gb/health/medical/the-20-most-painful-health-conditions-according-to-the-nhs/ar-AA1kSjMR?cvid=0891b67d26254255841cf61460de207b&ocid=winp2fptaskbarhover&ei=7" rel="nofollow noopener" translate="no" target="_blank">https://www.msn.com/en-gb/health/medical/the-20-most-painful-health-conditions-according-to-the-nhs/ar-AA1kSjMR?cvid=0891b67d26254255841cf61460de207b&ocid=winp2fptaskbarhover&ei=7</a><a href="https://disabled.social/tags/Pain" class="mention hashtag" rel="nofollow noopener" target="_blank">#Pain</a> <a href="https://disabled.social/tags/NHS" class="mention hashtag" rel="nofollow noopener" target="_blank">#NHS</a> <a href="https://disabled.social/tags/Endometriosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#Endometriosis</a> <a href="https://disabled.social/tags/SlippedDisc" class="mention hashtag" rel="nofollow noopener" target="_blank">#SlippedDisc</a> <a href="https://disabled.social/tags/Appendicitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#Appendicitis</a> <a href="https://disabled.social/tags/BrokenBones" class="mention hashtag" rel="nofollow noopener" target="_blank">#BrokenBones</a> <a href="https://disabled.social/tags/Shingles" class="mention hashtag" rel="nofollow noopener" target="_blank">#Shingles</a> <a href="https://disabled.social/tags/FrozenShoulder" class="mention hashtag" rel="nofollow noopener" target="_blank">#FrozenShoulder</a> <a href="https://disabled.social/tags/ClusterHeadaches" class="mention hashtag" rel="nofollow noopener" target="_blank">#ClusterHeadaches</a> <a href="https://disabled.social/tags/ComplexRegionalPainSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ComplexRegionalPainSyndrome</a> <a href="https://disabled.social/tags/CRPS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CRPS</a> <a href="https://disabled.social/tags/HeartAttack" class="mention hashtag" rel="nofollow noopener" target="_blank">#HeartAttack</a> <a href="https://disabled.social/tags/KidneyStones" class="mention hashtag" rel="nofollow noopener" target="_blank">#KidneyStones</a> <a href="https://disabled.social/tags/Arthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#Arthritis</a> <a href="https://disabled.social/tags/Gout" class="mention hashtag" rel="nofollow noopener" target="_blank">#Gout</a> <a href="https://disabled.social/tags/SickleCellDisease" class="mention hashtag" rel="nofollow noopener" target="_blank">#SickleCellDisease</a> <a href="https://disabled.social/tags/SickelCell" class="mention hashtag" rel="nofollow noopener" target="_blank">#SickelCell</a> <a href="https://disabled.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener" target="_blank">#Fibromyalgia</a> <a href="https://disabled.social/tags/Migraine" class="mention hashtag" rel="nofollow noopener" target="_blank">#Migraine</a> <a href="https://disabled.social/tags/Sciatica" class="mention hashtag" rel="nofollow noopener" target="_blank">#Sciatica</a> <a href="https://disabled.social/tags/TrigeminalNeuralgia" class="mention hashtag" rel="nofollow noopener" target="_blank">#TrigeminalNeuralgia</a> <a href="https://disabled.social/tags/AcutePancreatitus" class="mention hashtag" rel="nofollow noopener" target="_blank">#AcutePancreatitus</a> <a href="https://disabled.social/tags/StomachUlcer" class="mention hashtag" rel="nofollow noopener" target="_blank">#StomachUlcer</a> <a href="https://disabled.social/tags/P%C3%A1inAfterSurgery" class="mention hashtag" rel="nofollow noopener" target="_blank">#PáinAfterSurgery</a>

Scruffy Dux :krita: :inkscape:People with <a href="https://fosstodon.org/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChronicPain</a> that gets flared by hot weather, what methods have you found to cope, other than the obvious ones like cold showers, ice packs and freeze sprays?Have a week long 30C+ stretch and want to find ways to get through it with less pain.<a href="https://fosstodon.org/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener" target="_blank">#NEISvoid</a> <a href="https://fosstodon.org/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener" target="_blank">#Fibromyalgia</a> <a href="https://fosstodon.org/tags/CRPS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CRPS</a>

Domando Al Lobo 🐺El lunes pasado fue el <a href="https://mastodon.social/tags/DiaMundial" class="mention hashtag" rel="nofollow noopener" target="_blank">#DiaMundial</a> del Síndrome de <a href="https://mastodon.social/tags/Sudeck" class="mention hashtag" rel="nofollow noopener" target="_blank">#Sudeck</a> o Distrofia Regional Compleja. Mi compañera Noemí se pasó por "La Cueva" para contarnos brevemente en qué consiste. La visibilidad de enfermedades es eso: aprender y acompañar.#278 Síndrome de Dolor Regional Complejo por @Tio_Sudeck 🐺 <a href="https://domandoallobo.blogspot.com/2018/11/278-sindrome-de-dolor-regional-complejo.html" rel="nofollow noopener" translate="no" target="_blank">https://domandoallobo.blogspot.com/2018/11/278-sindrome-de-dolor-regional-complejo.html</a> <a href="https://mastodon.social/tags/blog" class="mention hashtag" rel="nofollow noopener" target="_blank">#blog</a> <a href="https://mastodon.social/tags/SDRC" class="mention hashtag" rel="nofollow noopener" target="_blank">#SDRC</a> <a href="https://mastodon.social/tags/DolorCronico" class="mention hashtag" rel="nofollow noopener" target="_blank">#DolorCronico</a> <a href="https://mastodon.social/tags/dolor" class="mention hashtag" rel="nofollow noopener" target="_blank">#dolor</a> <a href="https://mastodon.social/tags/EnfermedadesRaras" class="mention hashtag" rel="nofollow noopener" target="_blank">#EnfermedadesRaras</a> <a href="https://mastodon.social/tags/EERR" class="mention hashtag" rel="nofollow noopener" target="_blank">#EERR</a> <a href="https://mastodon.social/tags/CRPS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CRPS</a> <a href="https://mastodon.social/tags/CPRSOrangeDay" class="mention hashtag" rel="nofollow noopener" target="_blank">#CPRSOrangeDay</a> <a href="https://mastodon.social/tags/MovilidadReducida" class="mention hashtag" rel="nofollow noopener" target="_blank">#MovilidadReducida</a> <a href="https://mastodon.social/tags/Blogger" class="mention hashtag" rel="nofollow noopener" target="_blank">#Blogger</a> <a href="https://mastodon.social/tags/GuestBlogger" class="mention hashtag" rel="nofollow noopener" target="_blank">#GuestBlogger</a> <a href="https://mastodon.social/tags/mastoblog" class="mention hashtag" rel="nofollow noopener" target="_blank">#mastoblog</a> <a href="https://mastodon.social/tags/Mastoblogger" class="mention hashtag" rel="nofollow noopener" target="_blank">#Mastoblogger</a>

🤘 The Metal Dog 🤘<a href="https://mastodon.social/tags/TheMetalDogArticleList" class="mention hashtag" rel="nofollow noopener" target="_blank">#TheMetalDogArticleList</a> <a href="https://mastodon.social/tags/BLABBERMOUTH" class="mention hashtag" rel="nofollow noopener" target="_blank">#BLABBERMOUTH</a> MICK MARS On His Battle With Degenerative Disease Ankylosing Spondylitis: 'I'm Almost A Solid Bone Now'<a href="https://blabbermouth.net/news/mick-mars-on-his-battle-with-degenerative-disease-ankylosing-spondylitis-im-almost-a-solid-bone-now" rel="nofollow noopener" translate="no" target="_blank">https://blabbermouth.net/news/mick-mars-on-his-battle-with-degenerative-disease-ankylosing-spondylitis-im-almost-a-solid-bone-now</a><a href="https://mastodon.social/tags/MickMars" class="mention hashtag" rel="nofollow noopener" target="_blank">#MickMars</a> <a href="https://mastodon.social/tags/DegenerativeDisease" class="mention hashtag" rel="nofollow noopener" target="_blank">#DegenerativeDisease</a> <a href="https://mastodon.social/tags/AnkylosingSpondylitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#AnkylosingSpondylitis</a> <a href="https://mastodon.social/tags/BassGuitarist" class="mention hashtag" rel="nofollow noopener" target="_blank">#BassGuitarist</a> <a href="https://mastodon.social/tags/CRPS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CRPS</a> <a href="https://mastodon.social/tags/BackPain" class="mention hashtag" rel="nofollow noopener" target="_blank">#BackPain</a> <a href="https://mastodon.social/tags/Osseointegration" class="mention hashtag" rel="nofollow noopener" target="_blank">#Osseointegration</a> <a href="https://mastodon.social/tags/MetalHealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#MetalHealth</a> <a href="https://mastodon.social/tags/M%C3%B6tleyCr%C3%BCe" class="mention hashtag" rel="nofollow noopener" target="_blank">#MötleyCrüe</a> <a href="https://mastodon.social/tags/MusicalLegacy" class="mention hashtag" rel="nofollow noopener" target="_blank">#MusicalLegacy</a>

CryptoNaughtDOA<a href="https://mastodon.social/tags/crps" class="mention hashtag" rel="nofollow noopener" target="_blank">#crps</a> <a href="https://mastodon.social/tags/celestial" class="mention hashtag" rel="nofollow noopener" target="_blank">#celestial</a>

katch wreck"a single SNP in each of the genes ANO10, P2RX7, PRKAG1 and SLC12A9 was associated with developing chronic Complex regional <a href="https://mastodon.social/tags/pain" class="mention hashtag" rel="nofollow noopener" target="_blank">#pain</a> <a href="https://mastodon.social/tags/syndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#syndrome</a> type 1 (CRPS-1), with more males than females expressing these rare alleles. Our work suggests the possibility that a permissive genetic background is an important factor in the development of CRPS-1."<a href="https://jmg.bmj.com/content/early/2023/09/15/jmg-2023-109236" rel="nofollow noopener" translate="no" target="_blank">https://jmg.bmj.com/content/early/2023/09/15/jmg-2023-109236</a><a href="https://mastodon.social/tags/CRPS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CRPS</a> <a href="https://mastodon.social/tags/chronicPain" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicPain</a>

@FourQ ♿In the ambulance coming home from the Pain Clinic. I've not asked his last name but Frankie is nothing short of a legend. "I'll take this lane so we're not hitting the drains - it'll be a smoother ride for you". This guy seriously needs a raise. Right now! <a href="https://mastodon.online/tags/CRPS" class="mention hashtag" rel="nofollow noopener" target="_blank">#CRPS</a>

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