Terminal illness
#multiplesystematrophy
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Turns out Dad had got tangled up in Mum's cushion mountain as he emptied the commode, getting piss over his shoes and the carpet. Mum had for reasons best known to herself moved aside the plastic sheet that sits under the commode. Oh well, that's progressed the plans to get vinyl flooring in there #silverlining
I'm taking Dad to the GP later as his hips are agony and he thinks his #PMR might be returning. Mum wants to die. Isn't this fun boys and girls?
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hashtag dump
Evening all. I am popping by to see how you all are.
I’m plodding on, my mum is somehow still hanging in there (now unable to carry out any voluntary movements, fully bed bound, hoisted, and covertly medicated) and it is absolutely grim. Such a cruel disease. #multiplesystematrophy #dementiawithlewybody #endoflife #terminaldiagnosis
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Very interesting - thanks for posting.
A bit OT, but would like to mention that Li is toxic at typical doses in ppl w/ multiple system atrophy.
So far I've not come across an explanation, but study of Li toxicity in MSA might lead to a better understanding of disease mechanisms. I suspect there might be a connection with glycine & heme.
https://doi.org/10.1007/s00415-012-6655-7
https://doi.org/10.1177/1049909111434633
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@jwcph While agree that their supporters might not think this, the framers of this plan and many of the other House GOP members that back it, are of the Ayn Rand persuasions... the weak either live or don't.
Also, by making disabled people wait 5 years, they get sicker and require more care by then. There's no net gain for Medicare, just 3 additional years of suffering.
I lost everything waiting the two-years, got sicker & became more dependent due to my #ParkinsonsPlus #MultipleSystemAtrophy
Thanks. I need to keep all the healthy gray matter I have since I have a form of #Parkinsons #ParkinsonsPlus ( #MultipleSystemAtrophy )
The 50 degree F weather swing has my #ParkinsonsPlus #MultipleSystemAtrophy muscles playing havoc on me
I've had to take "bolus" doses of my Baclofen via my spinal pump &my muscles are Loosey-Goosey, like jelly
Had a bad one around the collarbone muscles. The neck ones scare me. Before the spinal pump with continuous Baclofen, I got broken bones from muscle spasms
Luckily, I have a bubble butt so as I "fall" forward, it plops me back up, like one of those toy punching clowns #MedMastodon
Re - #Introduction
I'm @paul. On the fowl site I was known as #FeedingTubePaul because I first started tweeting feeding tube awareness videos after getting mine on April 16, 2012, 11 years ago.
My social life & purpose evolved so here I am just Paul & @hashtaggames
My hashtags are #Parkinsons Plus-#MSA #MultipleSystemAtrophy #Disability #HashtagGames #Jokester #Healthcare, #USpol, #climate, #music, #literature, #movies, #TV, #fedi22 #Ohio #US #Veteran #Banjo #CatsOfMastodon among others.
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“rapid eye movement sleep behavior disorder (RBD)... can be associated with neurodegenerative disorders [like] Parkinson’s disease, Lewy body dementia and multiple system atrophy... #alcohol ...can worsen RBD and its effects”
–Lindsay Modglin (reviewed by Seema Khosla, M.D., F.C.C.P., F.A.A.S.M)
https://www.forbes.com/health/body/how-does-alcohol-impact-sleep/
I have #ParkinsonsPlus, #MultipleSystemAtrophy ( #MSA ) with severe autonomic dysfunction
I understand a lot of doctors treating #LongCovid don't understand #dysautonomia's, esp POTS
Speaking as a long-time sufferer, for #POTS they really should look at using #Pyridostigmine (brand name #Mestinon
It has been the best relief I've received in the past decade
The quality of my life improved after I started taking Mestinon
Significantly decreased my syncope and pre-syncope. #MedMastodon
#Sissy assumed her nightly position & purring so loud #CatsOfMastodon
Such a joy & relaxer. It does something for my #health to have such as great nurse like Sissy
This is a Two-fer hashtag toot
For #MedMastodon, the home pharmacy in background is to keep my #autonomic system in check. Nothing major pharmaceutical wise, just things that make you poo and pee, blood pressure medications & meds to keep other automatic things my body doesn't do now working #ParkinsonsPlus #MultipleSystemAtrophy