#autism #autistic #neurodivergent
I’ve always been called a sensitive kid growing up. I’ve always been smart and brainy and always have felt like an alien visiting Earth.
I grew up and went out in the world and found people who wear the label of “autistic” with pride and I started learning about “neurodivergence.”
After my suicide attempt, I started looking at my behaviors and tendencies and realized that I may have been “masking” my whole life.
CONT ->
#autism #autistic #neurodivergent
Most of my friends in adulthood exhibit lots of autistic traits and many have official diagnoses.
I have been building boundaries after my suicide attempt and that means unmasking and not flatly let things happen to me without saying a word as to not make any disruptions to the people around me.
This has pushed my behavior more into the realm of recognized autistic behaviors.
All my friends seem to recognize me as autistic.
CONT ->
#autism #autistic #neurodivergent
I don’t believe in self-diagnosis in general and especially in mental/psychological realms, as the tool being used for diagnosis may be compromised.
My friends said something profound when he mentioned how he was happier once he was diagnosed as autistic and he was normal and didn’t need the antidepressants to fix the anxiety and depression of masking and not fitting in.
My big question is…
CONT ->
#autism #autistic #neurodivergent
My question is, is self-diagnosis of autism a truly valid conclusion/diagnosis or a new-age internet phenomena to allow people to act entitled with disregard for others?
I certainly still do mask my emotions and remain in torturous situations I am forced to endure, but isn’t that being an adult and focusing on the wellbeing and comfort of others?
Of course, there is no binary answer and everything is situational, but these are the things I think about.
@jeffowski autism assessments at best have long wait times (especially for adults) and at worst have long wait times and cost a lot of money. Mine was thousands of dollars. Most people can't afford it, so the options are self-diagnosis or nothing.
@giflian
I'd say that the worst is worse than that. Medical diagnosis focuses on problem traits, not necessarily autistic ones, and the two don't overlap a lot, even if they may coincide a lot. I've heard of people getting misdiagnosed with things like just depression, and then put on antidepressants and left wondering why they don't work. How often this happens I don't know, but it's a real possibility.
But even with an accurate diagnosis, that can come with negative effects too, like employers not considering you.
@jeffowski
Here's an article that may be helpful:
https://www.autismbc.ca/blog/autistic-adults/reasons-autism-self-diagnosis-is-valid/
There's another I know of but can't find right now. I'll post it if I can find it.
@murdoc @giflian — this is my issue. “In the old days,” I could walk into any place I wanted to work and get hired. I can’t get past the algorithm to even be seen by an actual human being anymore. This is literally the thing that is finally convincing me that I’m autistic because my frustration got me to researching and it seems I’m categorized and find comradeship with autistics describing the same frustrations and difficulties.
CONT ->
@jeffowski Also, about showing disregard for others, a lot of the behaviors we think we have to do out of politeness are cultural. I lived in a Japan for a while, and there eye contact can be seen as defiant or entitled. Parents don't tell their kids "look at me when I'm talking to you!", they tell their kids to look down, because that's how you show respect.
Anyway, the goal shouldn't be to make everyone around you comfortable while you are slowly tortured inside. You also deserve comfort.
@jeffowski I'm still figuring out unmasking, but I find it helpful to think about what helps social interaction vs what impedes it. If I force myself to make eye contact, but then can't focus on what they're saying, who's needs are really being served? I think most people value being fully heard, even if that means less eye contact. Or if I need to excuse myself from a social situation for a break that's more pro-social than staying and becoming a non-verbal zombie, or worse melting down.
@jeffowski
Caring for the feelings of other people is a bi-directional social contract, not an obligation on you only as if you were a slave. If they don't make allowances for your well-being then you have no obligation to consider theirs.
@jeffowski
Do you think your motivation to considder yourself as autistic is to act entitled? Or is your motivation to better understand why you differ from people around you?
The individuals in modern western societies seem indeed to be strongly focussed on the own identity. The internet is full of pseudo scientific personality categorizations like "alpha, beta, sigma", " bears, wolves,..." and so on. And many individuals hype for that and base their identity uppon it. So your question whether ADHD and autism might be a comparable trend.
To be honest, I think they indeed can be. People will use this categories in the same way like they did with OCD "I sharpened all my pencils, I am so OCD" etc. But there is a big difference between somebody adopting a few stereotypical explanations and thoughtlessly stating one is a bit autistic, adhd, or whatsoever and somevody who went through the epiphany of understanding their own history and existance and all the challenges for the first time.
@jeffowski "I certainly still do mask my emotions and remain in torturous situations I am forced to endure, but isn’t that being an adult and focusing on the wellbeing and comfort of others?"
The point is that, what you perceive as tortuous situations that you have to endure, just are at most a mildly unpleasant chore for the vast majority of the population.
Would they still like to avoid them if possible?
Sure! But there are things to be done as an adult you can't avoid. 1/*
@jeffowski the difference is that you suffer much more doing them than many many people. ("Torturus, endure")
@jeffowski
I had been telling my health care team since I was 12 that I was autistic. They were aware of my belief. It wasn't until I was deep in my 50s that I presented my data to a therapist in such a way that he accepted it. There is no blame in self-diagnosis. We know us better than they do.
@jeffowski
I think that the main difference, and often point of confusion, is that someone is not diagnosing themselves with autism, but instead realising something pretty fundamental about themselves. You're not comparing yourself against a list of symptoms. But coming to understand something about yourself through, reading, watching videos and being in places like this, where you can interact with others like you.
It is in all the similarities, the common traits and ways of experiencing and reacting to the world. The way we are far more alike, than unalike. The way that it explains so much more than it doesn't. That we finally find out answers. A process that can be far better described as self-realising, than self-diagnosing.
Can we be wrong? Of course, although it is far less likely than you might imagine. The process is rarely done on a whim, or quickly. Most of us actually tend to take a lot of convincing to come to this point. A lot of soul-searching and self-doubt. Does it go on to make us feel entitled. Possibly, but again I would suggest, rarely in the way you mean. Mostly, the entitlement is about finally feeling able to stand up for ourselves and the needs we have.
@pathfinder
@jeffowski
"self-realising, than self-diagnosing." I think that captures it.
I frame it as the left-handedness of thinking. There's nothing wrong with us, we just approach and experience the world a different way. Trying to subvert that to fit in is exhausting and often traumatic.
Dropping masking is about saying fuck no to faking it, it doesn't mean we stop caring about other people or their experiences, just that we also care about and protect our own experience too.
@jeffowski
.
I have been looking for a chance to try to answer this question, ty.
.
It's different than other differences, isn't it, because the difference is the organ we think with, every type thinks something different about humans, about a lot of things, so it seems like it would be valid TO an Autistic, an Autistic would think it takes one to know one or something.
.
I mean, do we trust NT people to self-identify? Are they allowed to, or do they have to check with an Autistic doctor first, you know?
.
That doesn't need to look like rhetoric, no they don't. They police themselves about that, about who is and isn't and for every NT person telling me they don't think self identification is valid, I have three calling me a bloody weirdo all day long.
.
I may not be spent yet, not sure.
@jeffowski what a brave post. Thank you. Fitting in with the rest is something lots of people find difficult, neurodivergent or not. Find your tribe, where you can be yourself regardless. The rest of the world is do-able then is my personal experience.
@Complexiteit — I think the kids call it “based”.
@jeffowski If you need to engage the official medical community in supporting you in your self-diagnosis, then start the process. You'll likely have a year or so to back out, or at least delay and reassess.
People's needs for this are different, and it can pay to look at it from a lawyerly stance to determine which arguments with whom (could be yourself) that you need to substantiate. IMHO, people, ND or NT, don't assert possibly-contentious points from a place of comfort. Find your comfort.
@jeffowski As the other reply mentioned, it really is the only option that many people have. It took over a year to get an appointment and that was with two different referrals. The cost is outrageous for it, I got lucky that insurance covered it, but the cost would have been thousands without it. I personally dont like the spin the internet puts on it, its not some fun cute thing. Yet knowing and allowing yourself to unmask really does wonders for depression and all that goes along with it.
@jeffowski I will say that unmasking isnt some magic cure that makes the depression and anxiety just go away. It does help a ton and explains where a lot of issues stem from. Yet, i stayed on the depression meds, at least for awhile because I honestly found a diagnosis a bit depressing. It confirmed that some of issues that come with it arn't something that will ever go away even with medicine. Im at a point of trying to embrace the good sides of it and just accept the downsides as part of life.
@jeffowski There are very good reasons why self-diagnosis isn't a good idea for psychiatric conditions, but I'm not convinced any of them apply for autism, and that's part of the reason I'm convinced autism shouldn't be considered a psychiatric condition.
@jeffowski (on a side note, I've long been a fan of your account and I'm surprised that I wasn't following it. It seems like all the best accounts on Fedi end up posting to #ActuallyAutistic eventually.